Your question: How are families affected by Down syndrome?

How does Down syndrome affect a family financially?

Researchers found that average monthly out-of-pocket medical costs are about $80 more for children with Down syndrome compared to other kids. That adds up to about $18,000 over the first 18 years of life, the study authors said.

How can families help with Down syndrome?

Nurture your relationships with your partner, children, friends and family. Communicate with each other, laugh, do fun things together, celebrate traditions, and be sure to spend quality time with your new baby that doesn’t focus on his or her disability. The fact that your baby has Down syndrome is life-changing.

How does Down syndrome affect siblings?

The experience and knowledge gained by having a sibling with Down syndrome also seems to make children more accepting and appreciative of differences. They tend to be more aware of the difficulties others might be going through, and often surprise parents and others with their wisdom, insight and empathy.

How much does it cost to raise a child with Down syndrome?

We report health care cost data throughout childhood and adolescence for Down syndrome. The total mean annual cost of medical care was $4,209 across age groups with a median cost of $1,701.

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Why parents that do not have Down syndrome can have a child with Down syndrome?

The parent doesn’t have Down syndrome because they have the right number of genes, but their child may have what’s called “translocation Down syndrome.” Not everyone with translocation Down syndrome gets it from their parents — it may also happen by chance.

How does having a child with Down syndrome affect the parents?

Like any child, those children with Down syndrome in cohesive and harmonious families were also less likely to have behavior problems and more likely to have higher levels of functioning. Mothers expressing poor relationships with the child and family were more likely to have high stress scores.

What resources are available to help parents and families understand Down syndrome?

Here are some notable Down syndrome organizations and support groups for parents and caregivers to get you started.

  • National Down Syndrome Congress (NDSC) …
  • National Down Syndrome Society (NDSS) …
  • International Mosaic Down Syndrome Association (IMDSA) …
  • National Association for Down Syndrome (NADS)