What is the average lifespan of a person with Turner syndrome?

How long do Turner syndrome patients live?

The prognosis, or outlook, for women with Turner syndrome (TS) is usually good. Life expectancy for Turner syndrome might be slightly shorter, but by testing for and treating the conditions that come with TS, women with TS can expect to live essentially normal lives.

What is the death rate of Turner syndrome?

In a prospective study of 156 female patients with Turner’s syndrome who had survived infancy and been followed up for an average of 17 years there were 15 deaths. The expected mortality was 3.6. Sixteen of the patients had a congenital heart anomaly and five of the deaths occurred in this group.

Is Turner syndrome survivable?

TS is a random disorder caused by not having the typical pair of X chromosomes. TS cannot be prevented nor is there a cure. TS is found in every 1 in 2,000 living females. When survivable, TS is a treatable and manageable condition.

What famous person has Turner syndrome?

Actress Linda Hunt and gymnast Misty Marlowe, Scottish actress Janette Cranky have Turner’s syndrome.

Are there support groups for Turner syndrome?

Established in 1988, the Turner Syndrome Society of the United States is a national non-profit self-help organization dedicated to increasing awareness and understanding of Turner syndrome and providing an active networking program for affected individuals.

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Can Turner syndrome be misdiagnosed?

The discrepancies between the blood and skin karyotypes found in our patients mean that previous cases of Turner’s syndrome have been undiagnosed or misdiagnosed. We suggest that in some cases of Turner’s syndrome the abnormal cell lines die out in the bone marrow, thereby leaving the 46, XX cell line.

Why does Turner syndrome only affect females?

The condition only occurs in females. Most commonly, a female with Turner syndrome has only 1 X chromosome. Others may have 2 X chromosomes, but one of them is incomplete. Sometimes, a female has some cells with 2 X chromosomes, but other cells have only 1.

What are the odds of having a baby with Turner syndrome?

While Turner syndrome is not common (about 1 in 2500 live female births), approximately 1 to 2% of all embryos have Turner syndrome – but 99% of these miscarry, usually during the first trimester.

Is Turner syndrome high risk pregnancy?

Preg- nant women with Turner syndrome are also at a significant risk of serious hypertensive disorders of pregnancy and their associated maternal and fetal complications. Hypothyroidism and gestational diabetes also occur more often and may have maternal and fetal complications.